Stop topical steroid abuse!

Monday, July 29, 2013

Hot off the presses, the scratchy monster kids book!!!!!

My Dear Friend Kristina and Her Daughter Keira inspired a kids book for the red skin kids!! Amazing!!!!! You can get your copy by donating to!!!!!! Thank you Keira is completely healed!!!! 

 click below to get your book!!!

"I am proud to say that my daughter, Keira is giving back to the organization that helped save her skin, ITSAN, helping create a book based on her little monster who once terrorized our family. The children's book, 'Taming the Scratchy Monster' book has been published and is now available to order through 

A year in the making, it is a beautifully illustrated book for children and parents who are going through the topical steroid withdrawal process -- written by a dear friend of mine, fellow Red Skin warrior and brilliant author, Louise Jones.  My daughter, Keira and I came up with the concept of and character 'Scratchy Monster' during my daughter's painful withdrawal two years ago, a nuisance of a monster who once terrorized our family. 

Having both experienced topical steroid addiction and withdrawal, Louise and I teamed up to bring the 'Scratchy Monster' alive in a story that could help others who are still suffering.  Louise's skin is almost healed and my daughter, Keira fully healed last year from topical steroid addiction. She is now living life like a 5 -year-old should be, no longer a prisoner in her own skin. The story is based on our long and trying, and yet successful journey towards healing. In the story, the protagonist, Billy, endures many harsh conditions including a dry desert, an oozy swamp and a hot volcano in his efforts to escape the 'scratchy monster'. These conditions mirror the stages the skin may go through during the withdrawal process.

Steroid-induced eczema, also known as Red Skin Syndrome or topical steroid addiction, is a side effect of topical steroid creams -- a condition in which the body becomes dependent on topical steroid creams requiring stronger and stronger creams to obtain relief. The withdrawal process is a very painful one, but was necessary in order for my daughter to heal.

ITSAN (International Topical Steroid Addiction Network) is giving the book away with a minimum donation of $35.00. 100% of the proceeds from this book goes to to help children like Keira, and sufferers around the world. Louise and I wanted to give back to an organization that has changed our lives forever as well as help those who are still suffering from this painful condition.

Thank you Kelly Palace for starting an organization that is making a difference in the world; an organization that is saving so many people from this skin nightmare, illuminating what has been a very dark and lonely path -- Thank you for allowing Louise and I this opportunity. ITSAN is making a difference in so many people's lives around the world.

Please share this post with family and friends who may want to help support this cause or would like to have a better understanding of topical steroid withdrawal. Feel free to share this post on your blogs, forums, and other websites you come across to help get the word out and help raise awareness about topical steroid addiction.

Please go to under the tab,'children's book' and donate today to get a copy of the book.

With much love and admiration to all of you still battling the 'Scratchy Monster', never give up or lose faith that one day you will (as my daughter likes to say) 'kick Scratchy Monster in the booty' for good as my daughter did.
Kristina Ventura and Keira (5 years old, 2 years steroid-free!)

For more on the author's story of withdrawal, please go to Louise's blog:
Written by: Kristina, Keira's mom
Kline meets Keira and Z BOY!!!!

Wednesday, July 24, 2013

Sweet Norman red skin syndrome has healed!

I would love to introduce you to a strong brave boy, Norman! 
Norman's skin in withdrawal

NORMAN HEALED!!!!!! 18 MONTHS off Topical steroids!

Norman is 6 from Penang, Malaysia.  He Started using steroid at the age of 3 when his eczema was only small spot on his cheeks and near his knee. His eczema started to show no respond towards the topical steroids after a few years and that's when his eczema started to spread a little near his elbow, and his skin became rough with tiny bumps all over...
His parents found out about topical steroid addiction through a local Malaysian support group and quitting cold turkey in January 2012 when Norman was 5.

Norman's father was and is also on steroid for the past 20 years. Norman's father tried to go through withdrawal but failed after a few attempts because it was so bad he couldn't go to work. The family cannot afford long leave from his job and continuing the withdrawal may result in him losing his job.

 Norman showed signs of healing from topical steroid addiction at month 8-9 plus months. At 18 months he is completely healed, which gives us hope for Kline healing!!!

Thank you Ima for sharing Normas's story and healing, giving us all hope!!!

xoxo Loren and Kline

Tuesday, July 16, 2013

kline's skin picture updates 16.5 months off steroids

kline's Swedish family came for a wonderful visit!!

the neck is looking amazing!!!!!!

kline's girlfriend!!!!

almost 17 months off the topical steroids!!!

fun at the pool!! with daddy

this was kline last august 12 months off steroids

Friday, July 12, 2013

A mothers broken heart and cruel reality!

Omg, I have been replaced!  At the age of 4 my son has already moved on to another woman.
> Our neighbor is a 7 yr old girl. Well, Kline LOVES her!!!
> She comes over to play and bosses him around and he loves every second of it.
> This morning he woke up and said right away he wanted to have Kendra come over.
> Then he said,

> " I am going to marry Kendra!"
> And he was hell bent on it.
> I said,
> " I thought you wanted to marry me!?!?!" ( as most 4 yr old boy want to marry their mom's!)
> He said,
> " I changed my mind"
> Wtf?  My heart is slowly being crushed!
> Kline then said,
> " I want to marry Kendra today!"
> I said,
> " you know maybe you should wait till you graduate college!?!?"
> Kline said,
> " no, today!!!"
> I said,
> " why do you want to get married?"
> He said,
> " you know why, to have a wife!"
> I said, " you know you have to move out of our house if you get married...and pay all your bills, and you wouldn't be able to sleep with daddy and mommy."
> Kline said,
> "that's ok, you could visit!"
> Jesus Christ, wtf?  I put my blood sweat and tears into this kid and he is already done with me, at the age of freaking 4, over the first girl he meets!!!!

Luckly. There was no engagement, proposal or marriage today.  Not sure what tomorrow will bring, But he better not bring home a grand kid anytime soon!!!!
> We are all disposable!
> ;0)
> Boo hoo! Loren

Thursday, July 11, 2013

kline's summer fun videos

meet kline's grammy's hedgehog click here

kline does house work.....thanks for "helping" kiddo

kline's science experiment goes bad!!

kline finally gets to go to music in the park..its been 2 years!

Even though I bitch and complain about how the itchy bastard is still screwing with us everyday, he is getting to do some fun things....check out his fun videos above.

16.5 months off steroids, prescribed for 2.5 yrs for mild eczema.  His feet are still very bad and can not walk well some days. but we will get there!!!

xoxox Loren

Wednesday, July 3, 2013

"Got Christ?"

So, since being house bound for the last 16 months I have missed out on all the bumper stickers you see around town!  Let me tell you they fucking are pissing me off! 

"Got Jesus!"  Apparently NOT!'s more like we "GOT CRABS!!!!", Than JESUS!

I know some of you will really judge me for being anti Jesus, god and Allah! But fuck!!!!

How can a god let children suffer so? How can a god let children die of disease? How can a god let children die at school either by an act of god, thanks for that act, god.....or a mass shooting?!?  How can a god let huge waves take children away from the families on vacation? How can a god let children get buried alive? How can a god let children be homeless? How can a god let children be abused in any form by their loved ones or other people? How can a god let innocent children be bombed in their homes?  How can a god make a mother suffer by the loss of their baby of any age?

God, what the fuck is wrong with you? If you could cue me in on your logic I would really appreciate it because in my eyes it is totally mother fucking fucked up!

You are breaking my heart and so many other daily! Could you stop the shit...stop trying to teach us lessons or whatever the fuck it is you are trying to prove and just be nice!

Thanks, one pissed off mother of a kid who has suffered way too long!!!!!!!!