Stop topical steroid abuse!

Saturday, December 7, 2013

"I wish Santa would take away my itchies!"

Kline was having an itchy fit the other day and said,
" I wish Santa would take away my itchies!"

Wtf? No baby should have to wish for good health from Santa instead of their favorite wishful toy. But here we are going into our 2nd Christmas with the itchy bastard! Last year Santa let us down, damn do I hope he follows through this year!

Last year Kline had to open his Christmas presents in the tub. ;(

Come on Santa, take that itchy bastard and the tub he has imprisoned Kline into back to the north pole with you! Berry him in the snow for good, not to itch Kline or any other baby ever again!!!!! Please Santa!! I promise to be a good girl for the rest of my life if you do! I will even stop cussing.... Well, I could try at least!
Thanks SAnta xoxoxxo Kline's mom


Thursday, November 21, 2013

91 weeks off topcial steroids and I am sorry to say the itchy bastard is still attacking!

Well, not much new to report, I feel like a broken record that we are all getting sick of listening to. Kline is in another bad flare.  Up all night, till 4 or 7 am and sleeping till 2pm most days. Then in the bath till bed most days.  His feet are pretty bad and super itchy. He screams bloody murder when he gets in the bath because of the boo boo's on his feet and it breaks my heart, all I can do is hold his hand!

I have no idea if he will ever not be itchy.  It's is hard to keep my hopes up when it has been so long. I hope and wish with all my soul that his life gets better than this, that he is not itchy like this forever. Maybe Santa will answer our wishes this year? 

I, on the other hand have been obsessed with my diet and Crossfit!  I love Crossfit and thanks to my local Crossfit Jibboom, in Truckee Ca...I now have a new body, I am the strongest I have ever been, i am super healthy, and I AM one hot mama!

I will share my before and after pictures with you.....I have not shared my before picture much because I
not sure you can tell but his capillaries in his face a freaking out here and all red.  he is super itchy and flaring in the picture.

Sept. 2013

Nov. 15, 2013

was embarrassed but I shouldn't be....our life has been rough and I turned to food and wine...Now I am turning to working out and eating healthy and socializing at the gym!

I had gained 20 lbs, during my miscarried pregnancy and I can say that is all gone and more!

I am going to Kick Ass on the slopes this year, so watch out!!!

Kick ass Mom's, love Loren xooxo

Friday, November 1, 2013

Happy Halloween! A Food Allergy Stresser


ok for kline!

"It's Dairy!"

So the itchy bastard stayed away pretty much all day on Halloween!  That was super, and thank god for that!!

It should have been a stress free night then right!?!?

Well, as a mom with a severe food allergy kid, Halloween is always a scary nightmare!

Every house you go to you have to check the candy and make sure it doesn't have nuts, dairy, eggs, gluten, etc.

Kline has gotten really good at knowing what candies he can have! It is pretty amazing, how well this kid knows his shit! He can look into a huge bowl of candy and pick out which ones he can have, he is devoted to the cause!

The problem is people don't always let the kids pick their candy...they just drop a handful of candy into the kids bag and push them out the door.

So, if I could suggest something to everyone who hands out candy. Please let the kids pick the candy they want! 

Kline tried hard to do this, but people just thought he was being rude and "shopping" for the candy he wanted.  They did not realize that if he got a bite of a dairy, egg, or nut candy he could die. 

Kline was such a trooper.... If he got a dairy or nut candy....he would just walk back to me, say, "dairy" in a disappointed tone and give me the candy or give it to one of his friends.  I would reassure him that at the next house he may get a candy he could eat. It was sad but sweet and I was very proud of him!!

Actually, I was a fucking fool, because I didn't even bring his epi pen along. What an ass!!!!  Once it gets dark a deadly candy could easily be eaten on accident.

So, next year, I will remember a flash lite to see what the candy is and his epi pen! My Paxil and a nice big glass of wine will help too.

If you could remember to let the kiddos pick their own candy out of your bowl that would be great too,

From one freak of an allergy mom!
Xoxox happy Halloween

Sunday, October 20, 2013

Happy 4 and 1/2 year birthday KLINE!!!

 My silly goose turned 4 and a 1/2 tomorrow~  wow...such a big boy.  I can not believe that he has now been suffering for 2 years from topical steroid addiction.....those things sure did do a doozie on his little body!  20 months off topical steroids and staring to get more breaks during the day!  Still very itchy at night and sleeps from 3am till 2pm most days, vampire people!!! xooxo Loren

Pumpkin Patch Fun!!!!!

Thursday, October 10, 2013

How can kline look so good and itch so much???

Kline now 19.5 month after stopping topical steroids

19.5 months off topical steroids and still tubbing it. ugh!

but he does look and feel amazing....most of him anyway!!!! ;0)

 Below are pictures of my little Kline 19 months ago.....the healing is slow, but it is happening!

Monday, September 30, 2013

19 months off topical steroids, Kline is looking so good!!!

Now, if the dang itch would go away!!!! I started to use allergra for kids and he had a great day yesterday, not sure if it was just time for a good day or the allegra helped???? He is back in the tub today, so who the fuck knows?!?!


Friday, September 20, 2013

Mommy's sorry Kline!

I am sorry you are suffering so!

I am sorry I lose my patients with you!

I am sorry you are so itchy!

I am sorry you didn't get to go camping this summer!

I am sorry we put those steroids on you, even once!

I am sorry the doctors didn't tell us the proper way to use the steroids!

I am sorry you have missed out on so much!

I am sorry a lot of times I am not the mommy you deserve!

I am sorry I get so angry at the itchy bastard!

I am sorry your daddy and I do not have a strong relationship!

I am sorry your daddy and I do not give you the example you should have of a strong marriage and strong bond by love!

I am sorry I scream in the middle of the night when the itchy bastard takes  you over!

I am so sorry for the last 2 years of your life!

I wish I could take it all away. Erase it from your mind!  My only hope that when the itchy bastard is finally slain,  we will be better people because of him.  More compassionate  to others in their own struggles.  More giving and kind.  More thankful of a normal life.  Stronger in every way. 

But never the less, I am sorry my sweet honey bear!  I wish I could kiss you and make it all better, but I can't.
I love you Kline
Xoxoxo Mommy